E-Newsletter - July 2022
New Alliance Initiative
ALLIANCE TO LAUNCH INNOVATIVE PORTAL TO ENGAGE TRIAL PARTICIPANTS
The Alliance Participant Engagement Portal (PEP) is another innovative effort launching soon under the ICAREdata® project within the Alliance Data Innovation Lab. The goal of PEP is to facilitate clinical trial participant engagement and partnership in Alliance clinical trials. Essentially, PEP is a patient-facing site that will provide information and resources to patient volunteers enrolled in Alliance clinical trials. Patient volunteers will learn more about the purpose and process of their clinical trial; results and updates after the trial is over; future clinical trials that may interest them; and resources that may be helpful through their cancer treatment.
PEP has been created to thank patients for being part of cancer research -- to thank them for helping to fight cancer and letting them know that sharing their cancer experience can be a huge help to others.
PEP is being led by Suzanne George, MD, Alliance Group Vice Chair, with support from Nancy Campbell, MSM, RN, Clinical Research Nurse Manager, ICAREdata®, and the Alliance Patient Advocate Committee. The Alliance gratefully acknowledges the MITRE Corporation and Genentech for their work and support in creating PEP.
For other articles in this issue of the Alliance E-news Newsletter, see below:
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Nursing in the Modern Clinical Trials Era
Lisa A. Kottschade, MSN, APRN, CNP - Chair, Alliance Oncology Nursing Committee -
July is National Sacroma and Bone Cancer Awareness Month
A091902: Angiosarcoma -
Spotlight on Alliance Trials
*Recently Activated Trials
A221803 (Reducing Radiation Dermatitis - Breast Cancer
A091903 (Resected Mucosal Melanoma)
*Ongoing Trials
A011801 (COMPASS HER2 RD/Breast Cancer)
A021602 (CABINET/Advanced Neuroendocrine Tumors)
A021804 (Advanced Pheochromocytoma and Paraganglioma)
A031902 (CASPAR/Metastatic Castration-resistant Prostate Cancer)
A071702 (Somatically Hypermutated Recurrent Glioblastoma)
A081801 (Non-small Cell Lung Cancer) -
Announcements
Call for Nominations: Charles G. Moertel Lecture 2023
2022 Alliance for Clinical Trials in Oncology Foundation Special Projects Allocation Awards
Alliance Myeloma Committee Chair Appointment
Alliance Board of Directors Approve New Program for Procedure-Based Therapy (PPBT)
New Alliance Participant Engagement Portal to Launch Soon -
Alliance in the News
Inequities in Alliance Acute Leukemia Clinical Trial and Biobank Participation: Defining Targets for Intervention - Alliance NCTN/NCORP/AFT at 2022 ASCO